Aubin Lentz, the reason CF Bites Foundation exists

UNTIL CFSTANDS FORCURE FOUND.

Aubin Lentz was 2 years old when she was diagnosed with cystic fibrosis. Her mom Taylor started CF Bites Foundation in Charleston to fight back.

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Mad for a Cure

October 16, 2026 · Holy City Brewery

Mad for a Cure

The 5th Annual CF Bites Costume Gala is coming. Get your tickets before they’re gone.

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0+
Americans living with CF
$0K+
Raised at our first Charleston event
0 yr
Projected median survival today
$0B+
Invested by CFF in research

Source: Cystic Fibrosis Foundation Patient Registry

Aubin Lentz, the reason CF Bites Foundation exists
13,000+
enzyme pills Aubin has taken

Why We Exist

This is Aubin.
She is why.

In December 2020, Taylor Lentz learned her 2-year-old daughter Aubin had cystic fibrosis. Taylor had spent years caring for CF patients as a nurse in Charleston. Suddenly she was caring for one at home.

Aubin has taken over 13,000 enzyme pills and received more than 1,200 doses of Trikafta, a CFTR modulator that costs $300,000 per patient per year. It has helped enormously. But it is not a cure.

Taylor hosted a Halloween party at Holy City Brewery. The Charleston community showed up. Over $60,000 raised. CF Bites was born.

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Three Ways In

You Can Help.
Right Now.

You do not need a personal connection to cystic fibrosis. You just need time, money, or the desire to make a real difference in Charleston and beyond.

Most Impact
01

Donate

Every dollar goes toward cystic fibrosis research closing in on a cure. Direct donations support the CFF research pipeline.

Give Now
02

Volunteer

Join us October 16, 2026 for the 5th Annual CF Bites Costume Gala. We need hands before, during, and after the event. Time is just as valuable as money.

03

Join the Gala

The best night in Charleston for the best reason. Great food, great people, and a real difference made together for cystic fibrosis research.

I had cared for these patients for years. I knew what the future could look like. I wasn’t going to let that be Aubin’s story.

Taylor Lentz

Founder, CF Bites Foundation - Mount Pleasant, SC

Charleston Shows Up

2021

The year one Halloween party at Holy City Brewery became a foundation

4+

Annual fundraising events hosted in the Charleston area

100%

Of net proceeds go directly to Cystic Fibrosis Foundation research

100+

Local Charleston businesses sponsoring the fight for a cure

CF Bites Foundation community fundraiser for cystic fibrosis research in Mount Pleasant and Charleston, South Carolina

Mark Your Calendar

The Gala Charleston
Waits All Year For.

Costumes, a packed dance floor at Holy City Brewery, and a room full of neighbors who came to fight for a cure. See what’s next.

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Charleston businesses making the fight possible

CF Bites Gala Sponsor
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CF Bites Gala Sponsor
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CF Bites Gala Sponsor

Our Mission

Until CF stands for Cure Found!

Every dollar raised in Charleston goes toward cystic fibrosis research that is changing and saving lives. We channel funds through the Cystic Fibrosis Foundation - the most trusted name in CF research - until a cure is found.

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CF News and Research Updates

The latest on cystic fibrosis treatment, gene therapy, and CFTR modulators. Click to read without leaving.

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Common Questions

Quick Answers

What is cystic fibrosis?+
Cystic fibrosis (CF) is a life-threatening genetic disease that damages the lungs and digestive system. There is no cure. More than 40,000 Americans live with CF today, including children diagnosed at birth. Breakthroughs like Trikafta have dramatically extended life expectancy, but the fight for a cure is not over.
What does CF Bites Foundation do in Charleston, SC?+
CF Bites Foundation is a 501(c)(3) nonprofit based in Charleston and Mount Pleasant, SC. We raise money and awareness for cystic fibrosis research through our annual gala and community events. Funds support the Cystic Fibrosis Foundation's research programs and connect local families to resources.
Where does my donation go?+
Donations raised by CF Bites support the Cystic Fibrosis Foundation's research programs - the same organization that helped bring Trikafta to market and has funded more than 50% of all CF therapies. The CFF is one of the most transparent and highly-rated disease nonprofits in the country.
When is the next CF Bites gala in Charleston?+
Our annual cystic fibrosis fundraising gala is coming. Join our email list and you will be the first to know the date, venue, and how to get tickets. Past events in Charleston have sold out quickly.
Do I need a personal connection to CF to get involved?+
Not at all. Most of our supporters are Charleston and Mount Pleasant community members who want to put their time or money toward something real. If you have either of those, you belong here.
What is Trikafta and why does it cost $300,000 a year?+
Trikafta (elexacaftor/tezacaftor/ivacaftor) is a CFTR modulator that targets the underlying cause of cystic fibrosis rather than just symptoms. It has transformed outcomes for over 90% of CF patients. Its high cost reflects the complexity of development and ongoing access barriers. Financial assistance is available through Vertex and CFF Compass.
How do I become a corporate sponsor of CF Bites?+
We offer tiered sponsorship packages starting at $500 for our annual Charleston gala and year-round community events, partnering with one of Charleston's most impactful nonprofits. Download our sponsorship deck to see every level. Download it here.

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EVERY DOLLAR.
EVERY HOUR.
IT ALL COUNTS.

Research has already doubled the life expectancy of people with cystic fibrosis. Your support from Charleston keeps that momentum going toward a cure.

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